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"Focus on your abilities, not disability" - My Take by Ira Singhal, IAS Officer

Ira Singhal, Deputy Commissioner of the North Delhi Municipal Corporation, recently in the news after she targeted in an abusive social media attack, won kudos for her tact and toughness. In My Take, she talks about the influences that shaped her journey and inner toughness. I was born in Meerut and moved to Delhi with my family 25 years back. After class 12 at a mainstream school, I did a degree in engineering and then an MBA in Finance and Marketing before sitting for the Civil Services exams. I was Read More...

Accessibility July 23, 2019

Understanding Inborn Errors of Metabolism

Inborn errors of metabolism- IEM are a range of rare genetic diseases related to congenital disorders of metabolism. Since IEM are related to metabolism they affect the ability of the body to convert food into energy. The body is unable to breakdown the consumed food into Aminoacids and other elements that can be utilized by the body. When the body is not processing the food properly, it can result into production of harmful toxins that cause several other health problems. Inborn errors of metabolism are Read More...

Get-hooked March 17, 2019

Understanding Prader-Willi syndrome

Prader-Willi syndrome is a rare disease and affects one in every 15000 to 20000 births. Prader-Willi syndrome is a congenital condition meaning it is present in a child from birth. Cause Prader-Willi syndrome is caused by the deletion of a gene on chromosome 15. Intellectual disability, behavioral problems, Obesity, low muscle tone, mental impairments, hypogonadism are some of the conditions caused by the syndrome. Ideally, only the father's copy of this particular gene is active in a child while the Read More...

Get-hooked March 3, 2019

Understanding Rare Diseases

Rare diseases are those that affect lesser number of people in the general population as compared to other diseases and disorders. A Rare disease is also referred to as orphan disease and is defined as a condition that affects less than 200,000 people in the country. There are around 7000 known rare diseases that affect people across the world, the number could be more. Since these disease are rare and affect few people, there is not enough information available about their cause, diagnoses, treatment Read More...

Get-hooked February 10, 2019

"It was like the whole universe came together" - My Take by Ruma Roka, founder, Noida Deaf Society

What led Ruma Roka, who has no background or personal experience coping with a disability, to think of empowering deaf and hard of hearing children and youth? In My Take this week, the founder of Noida Deaf Society, shares her story. Maybe it's my upbringing or because I am a practicing Buddhist, but I always had a desire to do something good, something of value. I was thinking about starting a school and was exploring ideas in my head, when on a Sunday afternoon, I saw this woman on TV read the news in Read More...

Get-hooked November 13, 2018

Samarthanam is all about providing opportunities to disabled people!

Samarthanam, an NGO that works towards the welfare of disabled people, has already carved a niche in India. Spread across six states in India with nearly 500 employees, Samarthanam has been providing vocational training and developmental initiatives for not only disabled people, but those from economically backward families as well. Samarthanam was started in 1997 by Mahantesh G Kivadasannavar and Late Nagesh SP Samarthanam. The NGO has already won many national and international accolades. Mahantesh, who Read More...

Get-hooked July 25, 2018

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