Study says parents of disabled kids don't make long-term plans

This new study done in the United States has many learnings for India as well.

The study done by University Of Illinois at Urbana-Champaign says that less than half of parents of children with intellectual and developmental disabilities make long-term plans about who will take over their child's care after the parent dies or is unable to do so.

More than 380 parents, mainly mothers of people with disabilities, took part in the national survey. The parents were in the age group of 40-83 years and their kids with disabilities were aged between 3 and 68 years.

They were asked if they had finished planning 11 items related to their child's long-term needs, such as identifying a successor to the family caregiver, researching residential programs or establishing a special-needs trust.

More than 12% of the parents said they had not taken any of these actions.

Because people with disabilities are living longer, they are increasingly outliving their parents and planning for their future care should begin as early as possible. More than 77% of the disabled in the study lived with their parents or with another relative, while 17% lived independently with support, and 6% lived in group homes.

A large number of parents said their greatest problem was getting information about a care plan.

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