21 disabilities under RPWD 2016 - Thalassemia
August 17, 2018
As part of the weekly series where we tell our readers about the 21 disabilities under RPWD 2016, this week we will talk about thalassemia.
What is Thalassemia
Thalassemia is a range of blood disorders and is caused by abnormal production of the hemoglobin in body. Blood carries hemoglobin that contains iron molecule and is responsible for the transportation of oxygen in the body.
It is not one disease but a group of blood problems. The symptoms of the disorder vary from person to person. Some people are affected severely by thalassemia, while some are not affected at all.
Cause and Diagnosis of Thalassemia
Thalassemia is a genetic disorder and is passed on to a person through parents.
The diagnosis is normally done by blood tests including a complete blood count, special hemoglobin tests, and genetic tests. The presence of the disorder can also be detected before birth through prenatal testing.
Types of Thalassemia disorders
Hemoglobin is made up of two vital proteins, alpha and beta. Without enough of one or the other, red blood cells are not able to carry oxygen properly.
The blood disorder is of two types, Alpha thalassemia and Beta thalassemia.
Shortage of alpha hemoglobin results in Alpha thalassemia while the lack of beta thalassemia results in beta hemoglobin.
Symptoms of Thalassemia
Here are some common symptoms experienced by people with thalassemia.
- delayed growth in children
- Weak bones
- Enlarged spleen
- Pale or yellow skin
- Dark urine
- Poor appetite
- Heart problems
Treatment of Thalassemia
For people with mild symptoms a regular treatment is not required.
However, the shortage of oxygen can cause severe symptoms in some people and they have to get regular blood transfusions.
â€ƒ Thalassemia patients are now covered under RPWD 2016 to ensure them the rights, benefits and support they need.RPWD states that Thalassemia patients deserve life with dignity and respect.
Watch in Sign Language
- #RareDiseases - Poor awareness & support among the challenges people with Sturge-Weber syndrome face in India
July 18, 2019
- Trolled for a disability, UPSC topper Ira Singhal highlights need for inclusive education
July 18, 2019
- Relief for deaf youth studying at Bengaluru technical training centre
July 17, 2019
Read more on Newz Hook
- Accessibility July 13, 2019 Trichy Central Library brings written word alive for new audiences with a section for deaf readers
- Headlines July 16, 2019 Reports of rift within Indian cricket team to be probed
- Events July 14, 2019 Masti Time: Come share your stories
- Headlines July 15, 2019 Press Club of India supports media boycott of Kangana
- Parasports July 18, 2019 Dhoni is India’s pride & should stay - India's para cricketers root for the legend
- Get-hooked July 18, 2019 #RareDiseases - Poor awareness & support among the challenges people with Sturge-Weber syndrome face in India
- Get-hooked July 15, 2019 Freedom Carnival 2019 celebrates inclusion with children with disabilities
- Headlines July 15, 2019 ‘Chandrayaan 2’ launch called off after technical slag
- Get-hooked July 15, 2019 Saswati Singh's efforts to empower people with disabilities takes off as Nav Prerna Foundation
- Get-hooked July 16, 2019 Some tips to help a child with Down syndrome sleep better
Want to feature your inspiring story or share an event with the disabled community? Write to:
Newz Hook - Accessible News