Live Life Kingsize - My Take by C Pallavi Rao Narvekar
April 10, 2017
You never know what life has in store for you.
Just when I thought it was going perfectly fine with a fantastic career, name and fame, a too-good-to-be-true spouse and infant son, Myasthenia Gravis struck.
It is a rare autoimmune disorder that weakens your muscles. So much so that you cannot chew your food, get it down the throat, pick or hold things, walk straight, smile, talk clearly, see clearly.
And if it is accompanied by thymoma, a rare tumour linked to myasthenia gravis, then one has to go through major surgeries, followed by chemotherapy.
Basically, you end up depending on others for even the smallest things.
A person whose entire life depended on her voice for a living - as a Radio Jockey with Radio Mirchi, Delhi - I lost one vocal cord in a surgery. That was my story - a 100% filmi one.
The last 11 years has had me go through six surgeries, countless number of pneumonia attacks, myasthenia crisis and a Type 2 lung failure.
I fought each time. I came out victorious every time. That is where I was wrong. Constantly fighting.
Eventually, last year is when I ACCEPTED myself the way I am. With my - yes even if the word sounds clichéd and a little negative - disability. The inability to do everything in life on your own.
The dependency on others for small chores like picking up a bottle of water, changing clothes, washing hair or shifting to pureed food on bad days.
I finally, was OK with my bloated body and face and my breathlessness. It was fine if I did things at a slow pace. Simply because, I knew it would pass.
I would have better days. I would get into remission.
I learnt to listen to my body.
Many ask me what makes me tick? Many consider me an inspiration.
I thank them for their encouraging words. But do you want to know what makes me keep bouncing back?
It is the unquenchable need to live life another day, with my near and dear ones. Those who have stood by me through thick and thin. I am selfish. I want to be with them in a healthier state for a longer time. My husband Rahul, our son, my mom and brother.
I make sure I am forever, looking forward to something in the day, week, month...or life. It could be a dinner with friends, a new canvas, a sketch, a new recipe, a brand new initiative at work, my next blog post, short stories for my next book, going to the park with my son and stealing five minutes on the swing or a beach vacation. It could be anything.
With and without help. Life is beautiful. Live it. Kingsize.
About the Writer
C Pallavi Rao Narvekar is a voiceover artist and been a radio jockey with AIR Fm, Times Fm and Radio Mirchi. She is Group Head, CSR, of Radio Mirchi. She was chosen as one of the top Global 100 CSR innovators in 2015 during the World CSR Day.
Watch in Sign Language
Read more on Newz Hook
- Get-hooked June 22, 2019 Trending stories on NewzHook this week!
- Get-hooked June 24, 2019 Disabled adults experience the healing touch of animals for the first time at a therapy session
- Headlines June 21, 2019 Rahul Gandhi firm on quitting as Congress chief
- Headlines June 20, 2019 Panel to review ‘One Nation, One Election’ plan
- Get-hooked June 26, 2019 Nationwide contest seeks to unearth and showcase talented blind cooks
- Headlines June 22, 2019 India deploys warships in view of US-Iran conflict
- Headlines June 20, 2019 Dhoni must keep playing, says ex Aussie cricketer
- Headlines June 26, 2019 Mamata Banerjee says ‘Super Emergency’ in India since Modi rule
- Get-hooked June 21, 2019 Uber India apology to disability rights activist not enough, call for concrete measures
- Get-hooked June 24, 2019 Children feel like superheroes in this lovely photoshoot initiative started by American couple
Want to feature your inspiring story or share an event with the disabled community? Write to:
Newz Hook - Accessible News